Advocacy & Support for
Borderline Personality Disorder
& Complex Trauma
Research, Articles & Publications
A must read for any researcher considering doing research which seeks consumer/carers perspectives of living with Mental Ill Health.
Australian Mental Health Consumer and Carer Perspectives on Ethics in Adult Mental Health Research: Morse AR, Forbes O, Jones BA, Gulliver A, Banfield M. Journal of Empirical Research on Human Research Ethics 2019, Vol. 14(3) 234– 242
Diagnosis of BPD later in Life
Evaluation of a skills-based peer-led art therapy online-group for people with emotion dysregulation. Jewell M, Bailey RC, Curran RL, Grenyer BFS. (2022). BPDED Borderline Personality Disorder and Emotional Dysregulation. 9, 33
Bigotry and borderline personality disorder. Andrew Chanen Australasian Psychiatry Volume 29 Issue 6, December 2021
Consumer Perspective from people with a diagnosis of BPD on BPD management-How are the Australian NHMRC guidelines faring in practice?: Proctor, JM; Lawn, S; McMahon, J.
Using Art Therapy to support people living with Borderline Personality Disorder: Jewell, M; Brown, R and Grenyer, B.F.S. (2021) Download
Living with personality disorder and seeking mental health treatment: patients and family members reflect on their experiences (KR Barr, M Jewell, ML Townsend and BFS Grenyer Borderline Personality Disorder and Emotion Dysregulation (2020) 7:21
A Clinician's Quick Guide to Evidence-Based Approaches: Narcissistic Personality Disorder: King, Ross M.; Grenyer, Brin F. S; Gurtman, Clint G.; and Younan, Rita Faculty of Social Sciences - Papers. 4769.
Association of parent-reported sleep problems in early childhood with psychotic and borderline personality disorder symptoms in adolescence. Morales-Muñoz I, Broome MR, Marwaha S. JAMA Psychiatry. 2020;77(12):1-11. doi:10.1001/jamapsychiatry.2020.1875
Cochrane systematic review of Psychological therapies for Borderline Personality Disorder. Psychological therapies designed for BPD were superior to treatment as usual approaches, and evidence supports both behavioural (e.g. DBT) and psychodynamic (e.g. MBT) therapies. Common factors require more study, but all approaches emphasise the importance of a structured framework, good therapeutic alliance, an active therapist stance, and therapist support. (Storebø OJ, Stoffers-Winterling JM, Völlm BA, Kongerslev MT, Mattivi JT, Jørgensen MS, Faltinsen E, Todorovac A, Sales CP, Callesen HE, Lieb K, Simonsen E. Cochrane Database of Systematic Reviews 2020, Issue 5. Art. No.: CD012955.
Parenting stress and competence in borderline personality disorder is associated with mental health, trauma history, attachment and reflective capacity. Steele, K.R., Townsend, M.L. & Grenyer, B.F.S. (2020). Borderline Personality Disorder and Emotion Dysregulation 7, 8.
Priorities for service improvement in personality disorder in Australia: Perspectives of consumers, carers and clinicians. Fiona Ng; Michelle Townsend; Mahlie Jewell; Ely M Marceau; Brin F S Grenyer: Personality and Mental Health (June 2020) DOI: 10.1002/pmh.1485
Please talk to me. Please include me. I want nurses to understand. A report on carer perspectives on emergency department nursing practices for a person with borderline personality disorder: A report on carer perspectives on emergency department nursing practices for a person with borderline personality disorder
Acres,K: Loughhead, M; and Procter, N. Available online.
The lived experience of recovery in borderline personality disorder: a qualitative study
Fiona Y. Y. Ng, Michelle L. Townsend, Caitlin E. Miller, Mahlie Jewell and Brin F. S. Grenyer. Borderline Personality Disorder and Emotion Dysregulation 2019 6:10
European guidelines for personality disorders: past, present and future. Simonsen et al. Borderline Personality Disorder and Emotion Dysregulation (2019) 6:9
Borderline personality disorder and substance use disorders: an updated review. Trull et al. Borderline Personality Disorder and Emotion Dysregulation (2018) 5:15
A research report by SANE Australia in partnership with the National Mental Health Commission. The report puts forward a number of recommendations to improve mental health care and access to support for people affected by personality disorder.
Mental health presentations to acute psychiatric services: 3-year study of prevalence and readmission risk for personality disorders compared with psychotic, affective, substance or other disorders. Kate L. Lewis, Mahnaz Fanaian, Beth Kotze and Brin F. S. Grenyer BJPsych Open Volume 5, Issue 1 January 2019
Treatment of personality disorder using a whole of service stepped care approach: A cluster randomized controlled trial.
Brin F. S. Grenyer, Kate L. Lewis, Mahnaz Fanaian, Beth Kotze PLoS ONE 13(11): e0206472. https://doi.org/10.1371/journal.pone.0206472
FOUNDATIONS FOR CHANGE: PART2
This report provides analysis of the results of survey that was originally conducted in 2011 and repeated in 2017. This work was undertaken in order to compare and determine any changes in the healthcare experiences of consumers with BPD over time, given greater awareness of BPD within mental health and primary care service systems since the first survey was undertaken, and the release of the National Health and Medical Research (NHMRC) Guidelines for the Treatment of BPD in December 2012. A companion survey was also conducted with family members/ informal, unpaid carers of people with BPD, and results of this repeat survey are provided in a separate report.
Four-hundred and twenty-four (424) consumers with BPD entered the survey site. Of these, 424 consumers (100%) proceeded to answer survey questions, with 69 consumers (16.27%) completing all questions, and 355 (83.73%) being selective in which questions they responded to. This represents a substantial increase (almost threefold) in overall respondents compared with the original survey in 2011, although a decrease in the proportion of people who answered all questions. In 2011, 153 consumers (95.0%) proceeded to answer survey questions, with 92 consumers (60.1%) completing all questions, and 61 (39.9%) being selective in which questions they responded to.
CONSUMERS: Experiences of Consumers with the Diagnosis of Borderline Personality Disorder (BPD) 2017 Update. Lawn, S., McMahon, J., Zabeen, S. (2017) Private Mental Health Consumer Carer Network (Australia) Ltd: Marden, South Australia, Australia.
CARERS: Experiences of carers supporting someone with the Diagnosis of Borderline Personality Disorder (BPD) 2017 Update. Lawn, S., McMahon, J., Zabeen, S. Private Mental Health Consumer Carer Network (Australia) Ltd: Marden, South Australia, Australia.
Prevention and early intervention for borderline personality disorder: a novel public health priority.
Andrew Chanen, Carla Sharp, Perry Hoffman, and Global Alliance for Prevention and Early Intervention for Borderline Personality Disorder. World Psychiatry. 2017 Jun; 16(2): 215–216.
Our NDIS Story (2017) This article was written by Natalie (BPD Awareness ACT) on her & her husband's experience with the NDIS: the process he went through for being approved under the NDIS and how they have successfully used his NDIS Package to improve both their lives. Click here to download Our NDIS Story as a pdf
Clinician perspectives on recovery and borderline personality disorder.
Fiona Donald, Cameron Duff, Katherine Lawrence, Jillian Broadbear, Sathya Rao. The Journal of Mental Health Training, Education and Practice, 2017, Vol. 12 Issue: 3, pp.199-209.
Personality disorder: A mental health priority area.
Grenyer B.S., Ng F.Y., Townsend M.L., Rao S. Aust N Z J Psychiatry. 2017 Jul
The value of psychological treatment for borderline personality disorder: Systematic review and cost offset analysis of economic evaluations.
Meuldijk, D., McCarthy, A., Bourke, M.E., & Grenyer, B.F.S. 2017
Recovery from Borderline Personality Disorder: A Systematic Review of the Perspectives of Consumers, Clinicians, Family and Carers.
Ng, F.Y.Y., Bourke, M.E., & Grenyer, B.F.S. 2016
Missed diagnosis: The emerging crisis with Borderline Personality Disorder in older people.
J Beatson, J Broadbear, H Sivakumaran, F Moss, E Kotler, and S Rao. Australian and New Zealand Journal of Psychiatry. Dec 2016;50(12):1139-1145.
A new intervention for people with borderline personality disorder who are also parents: A pilot study of clinician acceptability.
McCarthy, KL, Lewis, KL, Bourke, ME, Grenyer BFS. 2016
Evaluation of changes in prescription medication use after a residential treatment program for Borderline Personality Disorder.
J Broadbear, J Nesci, R Thomas, K Thompson, J Beatson, and S Rao. Australasian Psychiatry. 24(6): 583-588, 2016
Psychotherapy for borderline personality disorder.
Beatson, J. Rao, S. Australasian Psychiatry · October 2014. DOI: 10.1177/1039856214555531
An integrative relational step-down model of care: The Project Air Strategy for Personality Disorders.
Grenyer, B.F.S. 2014. The ACPARIAN, 9, 8-13.
Improved prognosis for Borderline Personality Disorder: new treatment guidelines outline specific communication strategies that work
Brin F. S Grenyer. Med J Aust 2013; 198 (9): 464-465
Depression and borderline personality disorder.
By J Beatson and S Rao. Medical Journal of Australia 2013; 100(6 Suppl): S24-27
Managing borderline personality disorder and substance use - an integrated approach.
D Lubman, K Hall, A Pennay, S Rao) Australian Family Physician, 2011 Jun; 40(6):376-81.
"Foundations for Change" BPD - Consumer and Carer Experiences (2011)
Borderline Personality Disorder: Exploring the Lived Experiences of ACT Women and Service Providers "Not a Label. More than a Diagnosis"
This study (conducted by Women's centre for Health Matters in the ACT) investigated the experiences of women with lived experiences of being diagnosed or labelled with BPD in the ACT and the experiences of service providers who helped and supported them. The findings of this report highlight several areas of future work that we hope will assist in helping the ACT Government, health service providers and the range of other services who provide support to women who have been diagnosed or labelled with BPD in the ACT to improve their experiences and health outcomes.
Click here to access the paper.
Research into the impact of caring for someone with BPD
Burden and support needs of carers of persons with borderline personality disorder: a systematic review (2013) by Rachel Bailey (University of Wollongong) and Brin F. S Grenyer (University of Wollongong),
May be accessed online or downloaded as a pdf
Family Experience of Borderline Personality Disorder: Jan Giffin (2008)
ANZ Journal of Family Therapy Volume 29 Number 3 2008 pp. 133–138. May be accessed here
Stigma
Borderlines or People With Borderline Personality Disorder? The Influence of Labels on Stigma. Kaylee E. Null and Sara R. Masland. Society for Research in Psychopathology · At: Indianapolis, Indiana
Knaak, S., Mantler, E., & Szeto, A. (2017). Mental illness-related stigma in healthcare. Healthcare Management Forum, 30(2), 111-116. doi:10.1177/0840470416679413
Sansone, R., & Sansone, L. (2013). Responses of Mental Health Clinicians to Patients with Borderline Personality Disorder. Innov Clin Neurosci., 10(5), 6th ser., 39-43. Retrieved from http://europepmc.org/articles/PMC3719460
McNab C., McCutcheon L., & Chanen A. (n.d.). Borderline Personality Disorder, Stigma and Young People. The Inspector. Retrieved from https://www.orygen.org.au/Our-Research/Research-Areas/Personality-Disorder/Research-Bulletin-BPD.aspx.
Ciccarelli, S. K., & White, J. N. (2014). Psychology: DSM 5. Boston: Pearson.
Sisti, D., Segal, A. G., Siegel, A. M., Johnson, R., & Gunderson, J. (2016). Diagnosing, Disclosing, and Documenting Borderline Personality Disorder: A Survey of Psychiatrists Practices. Journal of Personality Disorders, 30(6), 848-856. doi:10.1521/pedi_2015_29_228
Stigmatizing Patients with Borderline Personality Disorder. (2016, March 11). Retrieved from http://www.psychiatryadvisor.com/practice-management/stigmatizing-patients-with-borderline-personality-disorder/article/407316/
Knaak, S., Szeto, A. C., Fitch, K., Modgill, G., & Patten, S. (2015). Stigma towards borderline personality disorder: effectiveness and generalizability of an anti-stigma program for healthcare providers using a pre-post randomized design. Borderline Personality Disorder and Emotion Dysregulation, 2(1). doi:10.1186/s40479-015-0030-0
Shanks, C., Pfohl, B., Blum, N., & Black, D. W. (2011). Can Negative Attitudes toward Patients with Borderline Personality Disorder Be Changed? The Effect of Attending a Stepps Workshop. Journal of Personality Disorders, 25(6), 806-812. doi:10.1521/pedi.2011.25.6.806
Suicide Studies
The benefits and risks of asking research participants about suicide: A meta-analysis of the impact of exposure to suicide-related content. Caroline A. Blades, Werner G.K. Stritzke, Andrew C. Page, Julia D. Brown. Clinical Psychology Review,
Volume 64, 2018, Pages 1-12,
Language use and suicide: An online cross-sectional survey. PLoS ONE 14(6): e0217473. Padmanathan P, Biddle L, Hall K, Scowcroft E, Nielsen E, Knipe D (2019) PLoS ONE 14(6): e0217473.
Diagnosis of BPD later in Life
Jo, R., Broadbear, J. H., Hope, J., & Rao, S. (2022). Late manifestation of borderline personality disorder: Characterization of an under-recognized phenomenon. Personality and Mental Health, 1–11.
Rosowsky, E., Lodish,E., Ellison, J.M., and van Alphen, S. P. J. A Delphi study of late-onset personality disorders. International Psychogeriatrics (2019), 31:7, 1007–1013
Videler, A.C., Hutsebaut, J., Schulkens J.E.M., & Sobczak S. & van Alphen, S.P.J. A Life Span Perspective on Borderline Personality Disorder. Current Psychiatry Reports (2019) 21: 51
https://doi.org/10.1007/s11920-019-1040-1
Bernstein, M.E., Reich, D.B., Zanarini, M.C., & Siever, L.J. (2002). “Late-onset” borderline personality disorder: a life unravelling. Harvard Review of Psychiatry, 10/5, 292-301.
Casher, M & Gih, D. (2009). Complex case: Emergence of borderline personality features in the sixth decade of life. Personality and Mental Health. 3, 68-73.
Tackett, J.L., Balsis, S., Oltmanns, T.F., & Krueger, R.F. (2009). A unifying perspective on personality pathology across the life span: Developmental considerations for the fifth edition of the Diagnostic and Statistical Manual of Mental Disorders. Development and Psychopathology. 21, 687-713.
Beatson, J., Broadbear, J.H., Sivakumara, H., George, K., Kotler, E., Moss, F., Rao, S. (2016). Missed diagnosis: The emerging crisis of borderline personality disorder in older people. Australian & New Zealand Journal of Psychiatry. 50/12, 1139-1145.